info@shevin.org
Mayer Shevin, Ph.D.
275 Fellows Ave.
Syracuse NY 13210 USA
275 Fellows Ave.
Syracuse NY 13210 USA
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| (315) 443-5179 info@shevin.org |
Mayer Shevin, Ph.D. 275 Fellows Ave. Syracuse NY 13210 USA | |
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ADAPT |
ADAPT is the group that taught us how to take disability
advocacy to the streets. Originally formed around issues of transportation
accessibilty, they have continued to be in the forefront of a wide range
of advocacy battles nationwide. |
| Autism National Committee
(AutCom) |
Is "...dedicated to 'Social Justice for All Citizens
with Autism' through a shared vision and a commitment to positive approaches."
The ANC Bookstore is a particularly
useful source of hard-to-find books of interest to anyone committed to
social justice for people with disabilities. |
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| Autism Network International
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An autistic-run self-help and advocacy organization
for autistic people. They sponsor Autreat , "...a retreat-style
conference run by autistic people, for autistic people and our friends." |
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| Autistics.Org: Resources
by and for Persons on the Autism Spectrum |
"The purpose of the autistics.org project is to connect
autistic people with the services we need to live whole and happy lives.
The immediate goal of autistics.org is to build a global database of information
and resources by and for persons on the autistic spectrum The autistics.org
project is primarily by and for autistics, not parents of autistic children,
though family members and professionals may find this website helpful
The autistics.org project is a project in the spirit of the various Linux
development projects: created by volunteers, it's not so much an organization
as it is a constructive anarchy." The site includes the brilliant, angry parody research website of the Institute for the Study of the Neurologically Typical ( ISNT ). |
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| Axis Consultation and
Training Ltd. |
Norm Kunc and Emma Van der Klift are consultants "...providing
professional development on disability and non-coercive practices, helping
people work with people, not on
them." (Norm and Emma are among the most thoughtful
and passionate advocates I know. Their "A Credo For Support" is
one of those brilliant resources that all of us who support people
with disabilities need to return to often to remind us where we are going
and why.) |
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| Capacity Works
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Beth Mount is a pioneer in person-centered planning.
Her website includes wonderful books and heart-opening inspirational
posters. |
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| Center for Human
Policy Studies |
The Center on Human Policy (CHP) is a Syracuse University
based policy, research, and advocacy organization involved in the national
movement to insure the rights of people with disabilities. Since its founding,
the Center has been involved in the study and promotion of open settings
(inclusive community opportunities) for people with disabilities. Their
site contains a wealth of information on programs throughout the nation
that are in the forefront of developing progressive approaches of support
and inclusion. The site also includes posters and publications available
from Human Policy Press
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| Eugene
Marcus |
Eugene is my friend, colleague and teacher. He
has written about autism and the supports, good and bad, that autistic
people receive, from an insider's perspective. Here is a link to
some of his writing. |
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| Facilitated Communication
Institute |
"Facilitated communication is an alternative means of expression for people who cannot speak, or whose speech is highly limited... Established at Syracuse University in 1992, the Facilitated Communication Institute conducts research, public education,training and scholarly seminars. It was created as a way of bringing together the research community, people with disabilities, their families, and practicing professionals to examine, learn about, and share information on facilitated communication." This site is the largest clearinghouse of information on Facilitated Communication available. In particular, check out the Institute's publication, The Facilitated Communication Digest, (which, incidentally, I edit!) archived at this site. | |
| Imagine: Finding
New Stories for People Who Experience Disabilities |
David Pitonyak provides workshops, seminars, and ongoing mentoring for those supporting people who are identified as displaying challenging behaviors. His website opens with this paragraph: "Imagine is the name I give my consulting practice, which is dedicated to supporting people who experience disabilities and exhibit, what some have called, 'difficult behaviors.' In my view, what's most needed when supporting someone who engages in difficult behaviors is imagination . If you will, the story-line that is floating around about the person is a major part of the problem. What's needed is a new story." (One of the joys of a lifetime of work in this field is the friendship and wisdom of people like David. His website contains a wealth of useful resources.) | |
| Inclusion Press
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Over the years, Inclusion Press has published a wide
array of books on both the practices and the underlying soul of inclusion.
Their books remain among the most useful tools for people involved
in school inclusion and person-centered planning. |
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| Mouth Magazine
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Funny, gloriously impolite, and always dead on target. As editor Lucy Gwin describes the magazine, "Mouth brings the conversation down to street level, where well-intentioned 'special' programs wreak havoc in the lives of ordinary people. People talk about calling a spade a spade. We call Jack Kevorkian a serial killer. And when maggots outnumber nurses' aides at what others call a 'care facility,' we call it a hellhole. We say it out loud: if special education is so darned special, every kid in every school ought to have the benefit of it." Mouth is a constant source of fresh thinking | |
| Not Dead Yet
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"Not Dead Yet was founded on April 27,1996, shortly after Jack Kevorkian was acquitted in the assisted suicides of two women with non-terminal disabilities . In a 1997 Supreme Court rally, the outcry of 500 people with disabilities chanting "Not Dead Yet" was heard around the world....People already have the right to refuse unwanted treatment, and suicide is not illegal . What we oppose is a public policy that singles out individuals for legalized killing based on their health status. ... Some bioethicists have even started to argue that intellectually disabled people are not persons under the law.... Legalized medical killing is not a new human right, it’s a new professional immunity. It would allow health professionals to decide which of us are 'eligible' for this service, and exempt them from accountability for their decisions. Killing is not just another medical treatment option, and it must not be made any part of routine health care." | |
| Nth Degree
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If any t-shirt company has a shot at changing the
world, this is the one! Dan Wilkins is a visionary who uses his
sense of the absurd as a tool of cultural transformation. You can
open hearts and change minds just by strolling or wheeling through the
mall wearing one of his shirts. |
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| TASH |
TASH is
an international association of people with disabilities, their family
members, other advocates, and professionals fighting for a society in
which inclusion of all people in all aspects of society is the norm.
I have been a member of TASH for 25 years. What I have always loved
about this organization is its non-complacency, its willingness to always
consider re-inventing itself. TASH has long felt like my "professional
family." |
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